Very quick update before crashing...
Today was a bit up and down. Joshua started the day quite perky, but his central line is still quite uncomfortable, which got him down a bit and made him a bit like a cat on a hot tin roof trying to find a comfortable position. His mood was a bit catching, and everything just kind of caught up at once. It brought home all of a sudden how much you would usually rely on friends in this kind of situation (like we did last week).
However the social worker was quite helpful, and there is lots of support out there. However, finding some local (Christian) friends is high on the agenda...
The good news is that most of the tests done this week have come back reasonably positive. From our quick chat with the consultant it looks like things are on track. He will be on fairly mild chemo this week, before they start with the heavier stuff.
There is also the possibility of some more suitable accommodation becoming available, which would be a huge blessing (although it is likely to be further away, which could bring a different set if problems).
Biggest prayer points are:
* Daily logistics, particularly what to do with Ruben
* Accommodation and transport/travel
* Joshua's physical, mental and emotional well being
* Local support
* Getting to grips with Brisbane
Thought: get in touch with hospital chaplain, might be a quicker way to boost the local (Christian) support network.
ReplyDeleteAccording to https://www.brisbanekids.com.au/ there are quite a few things within (just about) walking distance from you, including parks which though not necessarily interesting would be free and provide spaces where one can run around screaming without getting told off, and also potentially meet new (if temporary) "friends" to play with.
Wish we were closer to be able to do a bit of the "baby sitting". The girls would have a riot with Ruben, I think.