Saturday 4 November 2017

Days trundle on...

Still not much of note to report. We have spent most of the week working and studying - partly school, partly driving theory. The pause button on Joshua's life got pressed in August - so time to hit 'play' again...

We were at the hospital yesterday for an appointment with the consultant, bloods and line care. Joshua's platelets have hit the lowest point so far, but his white cells and neutrophils are on the rise again. More tests and appointments next week, but for now it is still a waiting game.

We are trying to keep ourselves amused. Yesterday after our hospital visit we wandered over the Goodwill Bridge to visit the Architecture Department at Queensland University of Technology, which is likely to be one of Joshua's top picks. 840m from the hospital as the crow flies - I can't help wondering if this is not a coincidence...

We had a good time. On the ground floor the students (I assume) have built a scale model of the centre of Brisbane. We also visited the workshop where there have all the laser cutting machines for making the models. All pretty cool...






This morning we went for pancakes at the hospital. Every Saturday volunteers from the Children's Hospital Foundation have 'Pancake Saturday' in the Ronald McDonald family lounge on Level 6. I went a couple of weeks ago when we were in hospital, but I wasn't allowed to take any pancakes up to the ward. Last weekend we went to the hospital especially to get pancakes, but due to a combination of leaving late and some event at South Bank that meant there was zero parking, we missed the slot. So we tried again...and they were pretty good 👦



After that, we spent two and a half hours playing Mario Kart on the Wii  U in the Starlight Room. Joshua is trying to make up for lost time..
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(Joshua is not quite as bald as the photo would suggest - for some reason my phone can't see his hair 👦) 

2 comments:

  1. Great to see progress even though it must seem slow. And it's lovely for us to be able to visualise the places you mention.

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  2. sending love from near Watford; what a time you've had of it.. hope it goes quickly and you'll soon be back home home! We have coming up Richard's mum's funeral, down Fareham way.. she got to 97! Hope to visit my mum more often now Rich not needing car for trips twice a week to his mum.. life goes from carer of kids to elderly rellies... xxx

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