Sunday 17 September 2017

Not much happening...

Not much going on here. Joshua is doing OK, although very much in the low energy phase. We managed to make it to the local park yesterday, with Joshua alternating between wheelchair and walking.

We had a nice lazy day today, with Ruben (who is the lie-in determining factor) sleeping in until after 8.00 after some fairly abominable behaviour last night. Please continue to pray for Ruben, who the disruption is probably affecting most. He lacks the means to positively express his emotions, so they come out in rather unhelpful ways. Pray also for patience and wisdom for us parenting him.

We have all been feeling a little low this weekend - we are theoretically about half way through the treatment, but feel like although we have come a long way, there is still a long way to go, and we wonder whether we have the stamina. No doubt God will provide 👦 For our accommodation we have to keep a chart of whether Joshua is an inpatient or outpatient each day - and looking back at September so far he has actually only spent 4 nights as an inpatient - which is quite encouraging really. Hopefully that trend will continue (although, because of the shape of the protocol for the final two rounds, he will need to be in for at least six nights).

My extended family has now all finally reached Cairns, and the other kids and I will be joining them on Tuesday - kind of a bittersweet thing.

Joshua makes a break for it in the wheelchair

Caleb discovers static electricity on the slide...



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